Tag Archives: safety

Oh no! Where’s my bubble?

The movie Bubble Boy, starring Jake Gyllenhaal as a boy born without an immune system has caused the phrase, “No, I do not live in a bubble, I have never lived in a bubble.”, to become common among individuals with immune disorders.

I have an immune disorder called “Acquired Hypogammaglobulinemia”, more commonly referred to as CVID (Common Variable Immunodeficiency).  It is a disorder that affects the antibodies (IgG, IgA, IgM, and IgE) of one’s immune system.  And, unlike Jimmy Livingston, I live my daily life without a protective bubble.

Generally, when I say immune disorder the first thing most people think about is AIDS.  Yes, AIDS is an immune disorder.  It stands for Acquired Immune Deficiency Syndrome.  However, there are other immune deficiencies that exist, like CVID, that affect many people.

CVID is not contagious.  In fact, doctors and scientists are still trying to discover how a person develops CVID.  It is most common for adults to be diagnosed with CVID.  However, more and more cases of CVID in early childhood are being discovered.  I was diagnosed when I was nine years old.  Now, at twenty-two, it has become an accepted and manageable part of my life.

If you saw me on the street, you would not know I had a life-threatening illness.  Monthly treatments of IVIG (intravenous immunoglobulins) or weekly infusions of SCIG (subcutaneous immunoglobulins) greatly increase my vitality.  These each take several hours and are extremely exhausting.  The infusions combined with a healthy lifestyle can help to maintain a very normal life for a person with CVID.

So, for all my fellow primary immune deficient friends out there, you can make it work! And for all the rest of you–no, I do not live in a bubble!


Jetblue Flight Attendant: Why we should be worried.

I am sure by now you have heard the story behind the Jetblue flight attendant who quit his job with a dramatic exit Monday August 9, 2010 at JFK Airport.  Steven Slater, was hit on the head by a passenger’s luggage and this was apparently all it took for Mr. Slater.  He had reached the breaking point.  He headed straight for the intercom, cursed out the passengers, grabbed a beer, then pulled the emergency chute.

The problem I see here is–Steven Slater made it all the way to his home before he was arrested by the police.

If this had been a passenger, cursing out other passengers, stealing from the beverage carts, and deploying emergency chutes, I would hope the airline staff would have acted quickly to ensure the safety of the other passengers.  So, what happened here?  Did none of the staff on board the plane report Mr. Slater’s behavior?  And if they did, where was the JFK Airport Security?

How was Steven Slater able to insult an airplane full of people, steal, illegally exit an aircraft, and leave the airport without being stopped by the airport security?  If they weren’t alerted by the airplane staff that something had gone a-rye, then the giant emergency chute jutting from the side of the plane should have shot up some red flags.

Why does no one seem to be concerned that this man was able to leave the airport unstopped.  This time no one was physically harmed but it could have been different.