Tag Archives: culture

Oh no! Where’s my bubble?

The movie Bubble Boy, starring Jake Gyllenhaal as a boy born without an immune system has caused the phrase, “No, I do not live in a bubble, I have never lived in a bubble.”, to become common among individuals with immune disorders.

I have an immune disorder called “Acquired Hypogammaglobulinemia”, more commonly referred to as CVID (Common Variable Immunodeficiency).  It is a disorder that affects the antibodies (IgG, IgA, IgM, and IgE) of one’s immune system.  And, unlike Jimmy Livingston, I live my daily life without a protective bubble.

Generally, when I say immune disorder the first thing most people think about is AIDS.  Yes, AIDS is an immune disorder.  It stands for Acquired Immune Deficiency Syndrome.  However, there are other immune deficiencies that exist, like CVID, that affect many people.

CVID is not contagious.  In fact, doctors and scientists are still trying to discover how a person develops CVID.  It is most common for adults to be diagnosed with CVID.  However, more and more cases of CVID in early childhood are being discovered.  I was diagnosed when I was nine years old.  Now, at twenty-two, it has become an accepted and manageable part of my life.

If you saw me on the street, you would not know I had a life-threatening illness.  Monthly treatments of IVIG (intravenous immunoglobulins) or weekly infusions of SCIG (subcutaneous immunoglobulins) greatly increase my vitality.  These each take several hours and are extremely exhausting.  The infusions combined with a healthy lifestyle can help to maintain a very normal life for a person with CVID.

So, for all my fellow primary immune deficient friends out there, you can make it work! And for all the rest of you–no, I do not live in a bubble!


Fort Bragg and “God’s Army” Outburst

Let me begin by stating that the Chaplain’s office along with the Billy Graham Evangelistic Association organized the “Rock the Fort” Concert at Fort Bragg.  It is the Chaplain’s job to nurture the spiritual needs of the soldiers.  It would be a completely different situation had a General or other military official ordered the Chaplain to organize the event. However, that did not happen.  The army website states, “While serving their own faith groups in the Army, chaplains also ensure and provide the means for others to observe their own faith in accordance with US law and regulations.”  This means, it is expected of the Chaplain to meet the needs of the spiritual members of the army.  It would be the same as if a Rabbi were asked to create a special Yom Kippur, Hannukah or Passover Meal event.

This is not about conversion.  It’s about taking care of the soldiers that are already believers and choose to attend concert.  No one is forcing military personnel to go to this concert. Just like no one forces christians to go to concerts on military bases that contain content they do not agree with. MRFF Anti-Christian Attacks.

Americans United for the Separation of Church and State are incorrect in stating that this concert is in violation of the separation of church and state.  They clearly do not understand the reasoning behind the First Amendment.  Thomas Jefferson and James Madison both write that the first amendment serves to establish a wall or division between the church and the state.  Meaning, the purpose was to keep government from intervening, establishing, supporting, or otherwise becoming involved in someone’s religion.  Not to keep people from involving their own religion in government.

It infuriates me that there is mass genocide occurring in countries all across the world, two children are sold into sex slavery every minute, people are starving to death in America, and THIS is what people are upset about?  That a group of christians want to get together and worship? It is time Americans take a look at what is important. We are focusing on issues that do not matter.

No, I do not want to touch your pregnant belly.

Attention all pregnant women:  I do not want to touch your belly.  It creeps me out.

The times my sister was pregnant, everyone in the family wanted to see the baby kick or feel the baby kick.  Even complete strangers came up to rub her stomache.

Let me stop right here and say, this is not ok.  If you do not know the woman who is pregnant, it is not ok for you to walk up to her and rub her belly.  Doing this makes you weird.

Anyway, back to the point I was making.  It seems that all other people think it is so normal.  Personally, it disturbs me.  Lately I’ve realized this may be a generational thing.  Almost every woman, my age, I have spoken with has the same reaction to being asked, “Do you want to feel the baby kick?”  The answer seems to be overwhelmingly, “No, awkward.”

American Flag is for ALL Americans

People. We are Americans. When did we become some concerned with protecting the rights of other countries that we forgot to protect our own?  Have we forgotten that men and women faced treason, death, disease, and many wars so that we would be free to wear the flag of America?  The American flag is a symbol for each American.  No matter where you came from, how you got here, that flag means that we are all one. If you are an American (Indian-American, Mexican-American, Irish-American, etc.) that flag represents you too.

People of every country have a right to be proud of who they are and where they came from.  This includes being proud that you are an American.   Never, in America, she we not be allowed to fly, wear, carry, show, or wave the American Flag.

There is a difference between being disrespectful of another person’s culture and heritage and being proud of your own.  If these students were being disrespectful, they should be punished accordingly.  Being told they are not allowed to wear the flag of their country while someone else can, is not a just punishment. However, the American Flag is also the flag of the Mexican-American students.

Primarily Americans, not people in Mexico, celebrate Cinco De Mayo (the day Mexico was victorious over France at the Battle of Puebla). In America, we celebrate Cinco De Mayo (not to be confused with Mexican Independence Day).  In Mexico, September 16 is celebrated as Independence Day because of “Grito de Dolores” or “El Grito de Independencia”.  The “Cry of Dolores” or the “Cry of Independence” was uttered on diez y sies de Septiembre.